Prof. Dr. med. Einar Wilder-Smith & Marek Dolezal
Center for Neurology and Neurorehabilitation (ZNN)
Lucerne Small Fibre Neuropathy Registry (LSNR) & Swiss Small Fibre Neuropathy Registry (Swiss-Small-Fire)
The ZNN in Lucerne is building a registry that collects data from people with small fibre neuropathy (SFN).
The first step involves retrospectively capturing existing clinical and diagnostic information (Lucerne Small Fibre Neuropathy Registry, LSNR). Building on this, a new nationwide Swiss registry (Swiss-SFN) is being established, which aims to consolidate data from across Switzerland over the long term and gain international visibility.
Systematic data collection enables a better understanding of the disease, promotes interdisciplinary collaboration, and lays the groundwork for future studies and new treatment approaches.